Lupus Is Going Down

Helping You Live Well With Lupus

in bed with pain

Yep, it’s a flare day. So, I’ll be in my recliner with my chronic pain flare up kit next to me. Read on to find out what I keep in it to help me cope.

Seriously, my lupus pain is so bad during my lupus flares that moving is almost impossible. The only reason I move to the recliner is because I need a change of scenery. It helps to keep the negativity away. But, before I even get in the recliner I make sure everything I could possibly need is next to it.

Actually, these items stay in a tote next to the recliner all the time for the most part. A few items I have to replace each time, and you’ll quickly learn why. When my pain flares up, I don’t feel like chasing things down.

Nor, do I feel like moving.

And, I’m sure you feel the same way. So, here’s what’s in my chronic pain flare up kit. Maybe, these will give you ideas for yours.

Things For Pain

Of course, since this is a survival kit for chronic pain, I need to have items that help me manage my pain. First up, I have my medications. I don’t want to have to get up when it’s time to take them. Included here, you’ll also find OTC pain medication like NSAIDs. These also include pain relief patches.

heating pad

Along with medication, you’ll find my heating pad. Actually, it stays on the back of the recliner. It’s always ready to go. Along with heat, I have cold packs for swelling. But, I keep those in the freezer and have someone get it for me when I need one.

Also, you’ll find some creams and oils. For instance, I have my favorite sports cream for when my muscles ache. Or, you’ll find pepperment oil or lavender. Not only do I find these to help with pain, they’re relaxing, too.

Devices for Communication

I understand that being stuck in bed because of pain can be lonely. And, that won’t help you at all. Actually, it will make things worse because loneliness can lead to depression. Once depression sets in, you’re caught in this downward spiral that seems endless. (For more on how emotional stress can trigger a flare, read my post Lupus Flare Triggers- Be On The Lookout).

Believe me, I’ve been there. And, it was a struggle to get out. But, it was a struggle worth having.

Yet, wouldn’t it be better to not even have to enter the fight?

That’s why it’s important to have someone to talk to. You know, a person that you can express your feelings to. Everyone needs to vent at times. We all need a shoulder to cry on.

And, they don’t even have to be in the same room. That’s the benefit of technology. You can communicate through chat, text, or Skype. Heck, you can even use your phone as a phone and call somebody.

Whatever method you choose, the point is that you communicate. Find someone that will listen and support you. Honestly, I think that it’s the actual act of getting it off your chest that helps you.

talking to someone when feeling chronic pain

You just need a sounding board. And, realistically, you need someone to call if you need physical help. But, overall, it just feels good to know someone’s there for you.

What if no one is picking up?

In that situation, you can always talk to your pets if you have them. My dog is the best listener. She loves me and doesn’t judge.

Or, you can always reach out through social media. There’s always someone willing to reply within the several Facebook groups I joined.

So, I may not actually have an actual person sitting in my chronic pain flare up kit, but I do have my devices that I use to communicate.

Things for Comfort

If you’re going to be in bed or on the couch all day, you need things to make you comfortable. Now, these fall into a few categories.

For one thing, you’re going to need items to help you with the temperature. If you’re like me, you know what being cold does to your body. Or, you know how being hot makes you miserable. And, when it’s really bad, your feet are always cold while your head is always hot.

So, I include my favorite throw blanket. And, it stays on the back of the recliner along with my heating pad. Yes, it’s a Harry Potter blanket because I’m a geek and having my favorite blanket is comforting. Along with my blanket I have a pillow.

Pillows come in handy. And, not just for your head. You can prop one under your feet. Or, you can angle one under your hip to relieve the pressure if you need to. And, yes, my pillowcase is Harry Potter, as well. Go with what you like.

Along with my comfort blanket and pillow, I have my pets. Yes, they are comfort, too. And, you better believe that, if I’m in the recliner, both my dog and my cat will be with me.

In addition, to giving me love, they provide warmth. Truthfully, if I’m having abdominal pain, my cat lays down on it. It’s like she knows. And, she’s a natural heating pad.

pets are comforting

Finally, I have items to keep me busy. For me, this is a book, my tablet, and laptop. I love to read and play video games( remember I’m a geek). And, I always have them ready to go in my kit.

Also, I have Netflix and Hulu ready to go on TV, too.

Again, these items comfort me. You can include whatever comforts you.

Stuff To Eat in My Chronic Panic Flare Up Kit

Yes, I have things to eat in my kit. You know how it is. You get hungry, but you don’t feel like getting up.

So, I keep healthy snack items in my kit. It’s that simple. For example, I love plantain chips. And, you can find them in my kit.

Now, I understand that you may be on a restrictive diet. Yet, you can still find items that are on your list that you can put in your kit.

Managing chronic pain is about learning to adjust. And, not about having to do without.

Let’s be honest. Snacking is not going to sustain you. You’re going to need meals.

Yet, you’re not up to cooking. So, what do you do?

Well, I use my crock pot. It’s easy, and doesn’t require much effort. Simply, throw the ingredients in, set it, and go back to bed.

Or, you could heat up freezer meals you’ve prepared ahead of time for days like this. That’s another thing I do for days that I can’t cook.

On days that I’m feeling better and have the energy, I prepare an extra meal to freeze for later.

While it’s stored in the freezer, it’s still a go-to item for my chronic pain flare up kit.

Miscellaneous Items

Along with all of these other items, there’s a few items that I put into my kit that really don’t fit the other categories. But, they are still important to me.

So, I put them in my chronic pain flare up kit:

  • Chargers for devices- so I don’t have to hunt them down
  • Hand sanitizer
  • Wipes/ paper towels
  • Electrolyte replenishment drinks like Gatorade
  • Small fan for when I get hot
  • Game controllers

For me, these are items I often use and need handy. The last thing I want to do is get up after I’ve finally gotten comfortable

What Do You Put in Your Chronic Pain Flare Up Kit

So, these are the items I put in my chronic pain flare up kit.

What are you going to put in yours?

It sucks being stuck in bed because of chronic pain. It’s even worse having to get up and get something.

And, that’s why having the items you need at hand in a chronic pain flare up kit is a good idea.

No, wait, it’s not just a good idea. It’s a great idea.

I hope this post helped you. If it did, share it to help others. That’s the lupus warrior way.

Also, be sure to like my Facebook page-

https://www.facebook.com/lupusisgoingdown/

You can always hit me up there if you need someone to listen to your pain. I’ve been there.

Wishing you better days ahead,

Chris

lupusisgoingdown.com

chronic pain flare kit

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